Chairman of the Parents Association of People with Thalassemia Indonesia (POPTI) Bogor branch Setionegoro Dr. Djoko said, the trend increase in thalassemia disease in the community continues to increase every year.
"Peningatakan reach him every 5 to 10 percent in Indonesia, while in West Java, every 3,000 births, 300 infants likelihood of them suffering from thalassemia disease," said Dr. Djoko Setionegoro, in Bogor on Monday.
Djoko explained, the introduction of thalassemia is still lacking in the community. Many people are not familiar with the blood disorder.
Thalassemia is an inherited blood disorder disease of the elderly are genetically differentiated into thalassemia minor (trait carrier / normal life) and Thalassemia major (requiring blood transfusion).
In the area of Bogor own quite a lot of people with thalassemia. Based on data from POPTI Bogor branch, number of patients with thalassemia as many as 244 people.
These diseases affect anyone, from age six months to 33 years. This disease makes sufferers rely on blood transfusions.
Thalassemia sufferers are living from blood transfusions. However, transfusion carries unfavorable effects for patients, such as iron in the patient's body increases.
"In some cases, iron overload can cause darkening of skin color, but if the iron was wrapped around the heart it will be very dangerous," he said.
To overcome these advantages, the patient should be given an iron chelation drug that serves as a binder and remove excess iron is provided regularly and continuously.
Djoko said, one way to prevent the development of Thalassemia in the community is to do a health check (checks the blood), particularly for couples who want to get married.
According to Djoko premarital medical examination is very important given the Thalassemia is a genetic hereditary disease from both parents. "So it's very important to do blood tests for couples getting married for both parents know the health history," he said.
Meanwhile, Chairman of the Bogor branch POPTI Day, Robby Kurniawan said, during the period of two years (2010-2011) Thalassemia has claimed four lives Bogor residents of a total 244 existing patients.
According to Robby, the majority of causes of death due to cardiovascular complications due to blood transfusion that is not offset by taking iron chelation.
"The lives of people with Thalassemia is a blood transfusion, but transfusion was brought unfavorable effects such as iron in the patient's body to increase," he said.
"Peningatakan reach him every 5 to 10 percent in Indonesia, while in West Java, every 3,000 births, 300 infants likelihood of them suffering from thalassemia disease," said Dr. Djoko Setionegoro, in Bogor on Monday.
Djoko explained, the introduction of thalassemia is still lacking in the community. Many people are not familiar with the blood disorder.
Thalassemia is an inherited blood disorder disease of the elderly are genetically differentiated into thalassemia minor (trait carrier / normal life) and Thalassemia major (requiring blood transfusion).
In the area of Bogor own quite a lot of people with thalassemia. Based on data from POPTI Bogor branch, number of patients with thalassemia as many as 244 people.
These diseases affect anyone, from age six months to 33 years. This disease makes sufferers rely on blood transfusions.
Thalassemia sufferers are living from blood transfusions. However, transfusion carries unfavorable effects for patients, such as iron in the patient's body increases.
"In some cases, iron overload can cause darkening of skin color, but if the iron was wrapped around the heart it will be very dangerous," he said.
To overcome these advantages, the patient should be given an iron chelation drug that serves as a binder and remove excess iron is provided regularly and continuously.
Djoko said, one way to prevent the development of Thalassemia in the community is to do a health check (checks the blood), particularly for couples who want to get married.
According to Djoko premarital medical examination is very important given the Thalassemia is a genetic hereditary disease from both parents. "So it's very important to do blood tests for couples getting married for both parents know the health history," he said.
Meanwhile, Chairman of the Bogor branch POPTI Day, Robby Kurniawan said, during the period of two years (2010-2011) Thalassemia has claimed four lives Bogor residents of a total 244 existing patients.
According to Robby, the majority of causes of death due to cardiovascular complications due to blood transfusion that is not offset by taking iron chelation.
"The lives of people with Thalassemia is a blood transfusion, but transfusion was brought unfavorable effects such as iron in the patient's body to increase," he said.
Source : Antara
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